march for babies blog

4 Apr

Including a Personal Story Can Make a Huge Impact!

Posted by Volunteers

Devon Henery, Phi Beta Sigma National March for Babies Chair, and his family.

Devon Henery, Phi Beta Sigma National March for Babies Chair, and his family.

One of the best ways to understand the mission of the March of Dimes is to hear someone’s personal connection to our mission – the stories are heart wrenching and inspiring all at the same time. Many of our national partners recruit their members who have a connection to our mission to serve as Ambassador Families during their March for Babies Campaign. The involvement of members in this capacity can provide a deeper connection to our mission for the entire organization and motivates members to go the extra distance when raising awareness and funds for the March of Dimes.

Organizations such as Jack and Jill of America, Zeta Phi Beta, Phi Beta Sigma and Sigma Gamma Rho have all recruited families at the chapter, state, regional or national levels to help spread the message about their organization’s efforts to improve the health of babies.

An Ambassador Family is one who has benefited from March of Dimes research or programs, and is willing to share their personal story with members of their organization by speaking at meetings, writing emails and sharing on social media such as Facebook. Do you or someone in your organization have a personal connection to our mission? Share your own story with your members and/or encourage others to serve as the Ambassador Family and share their stories with your organization. In addition, feel free to share the story of our 2013 National Ambassador, Nina Centofanti.

For more information and resources about March for Babies, visit

Now Let’s Hear From You:
Do you have an Ambassador Family for your organization?
Does your team walk in honor of a specific family or child?


Including a Personal Story Can Make a Huge Impact!

Comment by Danielle Galindo { Gia Galindo } — April 4, 2013 @ 6:53 pm

I am a Mother of a smart, resilient, tuff and Strong baby girl who was born with a CHD (stands for Congenital Heart Defect.) Her name is Gia Grace Galindo, she was born JANUARY 10, 2011. Thats when reality hit and i knew my life and my families life would take a drastic change. Gia was admitted to the NICU and after that it was like a domino effect and she ended up having more than just a Heart defect, she was born with an imperforate anus (meaning she was born with no BoBo), she ended up getting a UTI infection and they decided to give her a colostomy bag, after that surgery coming out of anesthesia was not looking good because she began to loose oxygen and her heart rate so our NICU team work on her to keep her stable and we found out she had an airway problem because it was abnormal. It was time to make a decision to leave our home town of Lubbock, TX. and pick a bigger children’s hospital to be able to provide her with the extra care she acquired. As a mother this was a hard decision, but with the faith of our cardiologist we chose THE CHILDREN’S MEDICAL CENTER located in Dallas, TX. Since this move to the children’s hospital has done nothing but WONDERS to keep my precious baby girl strong healthy and TUFF. Gia has over come 10 surgeries and will continue to have more as she grows. I am truly blessed to witness such a strong willed little girl. She will forever be my HERO!!!

Including a Personal Story Can Make a Huge Impact!

Comment by Julie Mallon — April 7, 2013 @ 7:25 pm

I have personalized my website with my charming grandson. Although he was not a premature baby, he is certainly benefitting from funding of research grants. Our Seton Medical Center Williamson team has adopted him as our March of Dimes baby!!

Including a Personal Story Can Make a Huge Impact!

Comment by Brandt Seymour — April 8, 2013 @ 2:18 am

December 12, 2007 was probably the most bittersweet day of my life. I went into labor with my third child at just 28 weeks due to a “hidden” complete placental abruption. The survival rate for both mother and baby was very low, yet thanks to an amazing medical team, both my son and I made it through.

Due to an emergency C-Section, I didn’t get to see my son during the birth or for the next two hours. I was told he was very small and was born breathing, but that was it. Nothing could have prepared me for the tiny body that awaited me. He looked absolutely perfect and was beautiful, yet his fragile little body was a devastating reminder of how much he would have to fight, and fight he did. His little lungs had shut down by the time I finally got to meet him. He was on a ventilator with every cord and wire imaginable surrounding him. He had monitors with stickers no bigger than a nickel that seemed to overwhelm hit little tummy. His head was the size of a baseball and his entire leg was the size and with of my index finger.

In the following days and weeks, he suffered with infections becoming septic several times, he dealt with jaundice, as well as struggling with a ventilator, the c-pap, coding and having to go back onto a ventilator, then dealing with the c-pap again, oxygen through a nasal canula, and finally, room air. He had trouble feeding, keeping his temperature, and gaining weight, yet miraculously, at just 6 weeks in the NICU, he was allowed to come home.

His road continued to be a rough one suffering from strokes, hypotonic cerebral palsy, sensory integration disorder, global developmental delay, and permanent brain damage. Because of this, we were told at one point, that he would never walk, talk, eat, play, or be a “normal” child. Though it took him awhile, he surpassed every obstacle- walking by 3, talking by 3 1/2, eating by 4, and he continues to play and be as normal as any other child… he is just differently abled. Though he has a long road ahead of him, we know how blessed we are to have had every minute passed, and every moment to come. He is truly our little miracle baby.

If it weren’t for the March of Dimes and their research, the methods of saving these pre-term, preemie, and micro-preemie babies would still be in the dark ages. Thanks to their research, everyday, more children live, more children are saved, and more children have hope than did the day before. March of Dimes research provided the research and methods to give our son the life saving medical care he desperately needed. We see hope and a walking miracle everyday. Please help join the cause to save as many babies as possible.

Including a Personal Story Can Make a Huge Impact!

Comment by H. Michelle Smith — April 8, 2013 @ 5:50 pm

In 1994 Igave birth to my youngest son Storm, He was four weeks early with breathing complications and had to stay in the UMC hospital for nine days. I am thankful for all the help from nurses and volunteers of helping take care of him.Storm will turn nineteen on May 4, and is very healthy, thanks to all the help from people who cared to provide for premature babies.
My oldest brother was a premature baby weighing less than 4 pounds. I have relatives and friends who have had premature babies that have had to rely on the hospitals to take care of their babies while the babies gained weight.
I am proud to help raise funds to help premature babies have a chance at life.
A beautiful little girl Addison Renfroe was born this past weekend and is having to rely on people who care enough to donate funds to help premature babies like her and their families, hoping others will feel the need to help out and donate to the cause.

Including a Personal Story Can Make a Huge Impact!

Comment by Heather — April 9, 2013 @ 9:59 pm

I am walking on behalf of my baby girl that was born at 28 weeks she only weighed 2 pounds 14 ounces I thank god every day for blessing me with this miracle beacause that what she is. My heart goes out to all those mothers that have been through this. Now if you seen my baby girl you would never know that she was that little she is now 7 years old and very tall and slim and doing great. All you have to trust in the god lord and he will be right there by your side.

Including a Personal Story Can Make a Huge Impact!

Comment by Bethany Wallace — April 10, 2013 @ 1:43 pm

I will proudly be walking in honor of my son, Logan Thomas Wallace. He was born 16 weeks early, weighing only 1 lb. 15 oz.

Including a Personal Story Can Make a Huge Impact!

Comment by Tiheshia Tucker Morrison — April 10, 2013 @ 4:58 pm

The March of Dimes is great! This organization played a key role in ensuring my 8 ½ week premature son, Cory Tucker-Morrison, grew and is still growing to be a healthy young man. I am forever grateful!!

Including a Personal Story Can Make a Huge Impact!

Comment by Tammy Creed — April 11, 2013 @ 12:20 pm

My son Matthew was born at 26 weeks and lived in the NICU for 6 months. He went from 1 lb 12 oz to 8 lbs before he passed in January 1999. He was my hero, he put up a hard fight, he is my little angel that I was blessed to have in my life for 6 months. I believe in this walk for babies.

Including a Personal Story Can Make a Huge Impact!

Comment by Kathy Sheppard — April 11, 2013 @ 4:29 pm

Our beautiful grandaughter Willow was born at 24 weeks and 1 day. My daughter was having a few minor problems and I took her in to see her Dr. that morning,at this time she was 23 weeks and 5 days, her Dr. informed her that she was losing the baby, was dilated to a 3, and immediately started treating my daughter, as I called in my husband to drive up, and for prayer from family & friends. We owe so much to her Dr. for her knowledge of how to handle the situation, and to God for the prayers already being answered, as we were pretty upset at the time because of how early she was. She was given a shot while still at the Dr’s office to help develop the babies lungs, while they waited for an abulance to transfer my daughter to the local hospital. When she arrived at the hospital she was dilated to a 5, the Dr. had ordered her to be given magnesium to help with brain bleeds when the baby was born because of how premature that she would be, this hospital did not have the facilities for 23 week babies, and they decided against transporting by ambulance at this time, so they flew her to Scott & White Temple. We were about an hour and 45 minutes away from the hospital they were flying her to. My husband suggested that I start the drive to the hospital they were flying her to while he stayed with her until the helicopter arrived to take her. It was so hard to leave her but we wanted someone at Scott & White as soon as we could get there. When I arrived at Scott & White, I was met by concerned family and friends. The helicopter had already arrived. As they set my daughter up she was told that the baby had only a 25% of survival if she was born at 24 weeks, and that was just to survive, including with some form of disbility. So we prayed more, and so many others prayed more. My daughter was given something to stop the contractions, which were not strong enough to feel at this time, but she continued to have them but not very strong. They told her that each day that she didn’t have the baby would help the babys chance of survival. Though the bag was already exposed, she waited in the hospital for 3 days without being allowed to get up. She was checked numerous times because the bag would come out partially and they were able to push it back in, until they were no longer able to do that. At one point during a check the baby grabbed onto the Dr’s finger. Because of risk of infection they decided to let her go on and have the baby, but then upon checking her she had begun to have some bleeding, I beleive from placenta preevia, so they took her to do an emergency C-Section. Willow was born at 24 weeks and 1 day. She weighed in at 1 lb 4 oz., and words cannot describe fully how tiny she was. She had to be immediatley put on a respirator, but they told us she cried when she was born, so we were encouraged that she could do that. She lost down to 1 lb 1 oz, but she was a fighter from the start. She could not be touched except for diaper changes and turning her, for quiet some time, as they told us that it actually hurts her to be touched at this point, and she didn’t tolerate her hands on at all, so right now just the Dr’s and nurses touched her, and it had to be done quickly because her oxygen level would drop. She was starting to have some problems with her lungs, and had to have the PDA heart surgery while she still weighed 1 lb and a few ounces. She did great and recovered from that. It was quiet awhile before mom and dad could touch her, and then grandparents, but only at hands on time, until she was about 2 months old. It took several months to get her off of the respirator and to a cpap, where they could feed her a bottle, as she had been being fed by a tube into her stomach. She had retinopathy but her eyes have corrected themselves, with Gods help. She went home from NICU after 3 months. Today she is an amazing 14 month old little girl. She weighs 15 lb’s. She is crawling, feeding herself finger foods,clapping, and beginning to take 2 or 3 steps on her on. We have a living miracle,and she is such a joy. I am so proud of my daughter for being so brave when going through such a scary thing, and she is the most amazing mom. We have a living miracle, and she is such a joy. I have no doubt that it is due to the Grace of God, along with some very special NICU workers, Dr.’s, family, friends and many prayer warriors that have brought her through many difficult times.

Including a Personal Story Can Make a Huge Impact!

Comment by Kathy Sheppard — April 11, 2013 @ 4:31 pm

Thank you to March of Dimes, and everyone donating to such an important cause, helping babies to survive, and thrive.


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