march for babies blog

30 Mar
Linda

Walking Together for Stronger, Heathier Babies

Posted by Linda

It is almost April and March for Babies walks are starting soon! Why do you walk?


COMMENTS

Walking Together for Stronger, Heathier Babies

Comment by Gina Boyd — March 31, 2011 @ 2:48 pm

I walk because 2 of my grandchildren were premature births and are healthy because of programs like the March of Dimes!

Walking Together for Stronger, Heathier Babies

Comment by Paul Fuller — March 31, 2011 @ 8:21 pm

I am at the point now where I don’t know exactly how many years I have been walking for the March of Dimes, but here is my story and why I got involved!
I don’t look for nor do I want any sympathy, I just use this as an opportunity to educate and possibly prevent others from going through the challenges I faced!
Kristi- 4/3/1983
My oldest daughter was born on April 3, 1983 at 30 weeks gestation out of a normal 40 weeks of gestation. She weighed 3 pounds 4 ounces and was in NICU (Neo-natal intensice care) for 2 months! At 3 weeks of age she had to have an open heart surgery to close off a valve that is suppose to close off on it’s own. Patent Apenductus is the name of that surgery. She had both lungs collapse and had tubes inserted to help her breath until her lungs were mature enough to do it on there own! She is 27, soon to be 28. Our first experience of prematurity!
Allison- 4/7/1985
My second child was born on April 7, 1985! What a struggle it was to get her here and have her make her debut in a healthier fashion than her sister did. Again at 30 weeks gestation my wife’s amniotic fluid started leaking. This is something that could become critical and spent time in the hospital to control it and was eventually sent homeunder strict BEDREST until she delivered at 38 weeks of gestation. Our largest and healthiest baby weighed 6 pounds 15 ounces, but it was a challenge and a VERY stressful time to get to that point!
Jacob- 1/10/1991
We planned for Jacob! We did everything right! We had counselled with the OB-GYN about whether we should or shouldn’t. No caffeine for 6 months prior, no birth control pills for 9 months prior to conception. We were excited about having and making sure we were going to have a NORMAL pregnancy. We did until one morning that changed our families life forever January 10, 1991. At 26 weeks gestation, my wife felt “FUNNY”. She was emotional, weak, and tired. We called the Dr. and because of the history she told us to go to the hospital to be evaluated. She was dialated to 10. No turning back!
Jacob was born weighing 2 pounds 2 ounces. Very premature lungs and was in extreme condition! He lived just short of one day. His lungs not developed enough to overcome his premature state. He is with us everyday! He never leaves us and a day never goes by thinking about where he would be in life. We think about hiim everyday and talk about him freely to those that want to hear our story! Broken DREAMS!
Joshua- 4/19/1992
After many tests, counseltations, referrals and determination, it was our last chance to have one more baby. We knew it would be a challenge, but it was something we knew we had to try and do… for ourselves, for the peace of knowing… one last chance!
A home monitoring system twice daily. A Cerclage. STRICT bed rest… only for showers and bathroom needs was she able to get up. Weekly trips to the doctor that led into bi-weekly trips toward the end.
At 33 weeks my wife was admitted to the hospital for pre term labor. She never came back home and delivered Josh at 35 weeks gestation. He had trouble breathing, lungs were premature. He weighed 5 pounds 13 ounces. A little tyke. We were PROUD that we did it! Technology, research and knowledge is what helped us get there. All made possible with funding and support through March of Dimes somewhere along the way!
I started walking sometime after Josh was born! I walk every year… because I KNOW THEY ARE MAKING A DIFFERENCE! I have seen it with my own eyes on progress in fighting prematurity and infant mortality. I have seen the results in fighting birth defects!
If you have any questions, feel free to message me or talk to me in person and I will give more details on anything you want to know!
You can sponsor my walk by clicking on the link below… PayPal, Credit Card, Cash or Check whichever is easier!

http://www.marchforbabies.org/personal_page.asp?pp=1279694&ct=4&w=4508373&u=pdflyer

Walking Together for Stronger, Heathier Babies

Comment by Celia — March 31, 2011 @ 8:27 pm

I walk in honor of my son Jackson Caddle Gosa. He was born sleeping at 20 weeks due to a umbilical cord injury. I walk to help raise money for research to help other babies and families who face the issues we did. The March of Dimes helps so many people. I want to help.

Walking Together for Stronger, Heathier Babies

Comment by Michele — March 31, 2011 @ 8:43 pm

My youngest daughter was born at 26 weeks. She weighed 1lb 15oz and spent three months in the NICU. We have been very lucky. At 18 months, she is healthy and thriving, and weighs almost 20 lbs! We walk for her, and for those babies and families that have not been as lucky.

Walking Together for Stronger, Heathier Babies

Comment by andrea — March 31, 2011 @ 9:01 pm

Im walking because on june 6, 2009, my little boy was born at 24 weeks. he weighed 1lb and 10ozs. he had to go through several surgeries and stayed in the nicu for 4 months. he got to come home in october 2009 and he got to have all of his first holidays with us. but in january he had to have suegery on his brain. he recovered and came home. 24-hours later he was back in the hospital not responding to anything or breathing on his own. after being in the hospital for a week we made the decision to take him off of life support. he was 7 months old. he has been gone for alittle over a year.

Walking Together for Stronger, Heathier Babies

Comment by Bridget Anker — April 2, 2011 @ 1:00 pm

I walk beacuse my daughter was born 15 weeks premature. She had a rough couple of months her health went up and down for a long time. I am thankful that she is now a happy healthy 20 month old. I don’t want other parents to go through what I went through.

Walking Together for Stronger, Heathier Babies

Comment by Frank T. Conley — April 3, 2011 @ 12:43 pm

Please make a donation for stroger happier healithier babies. I got the ball rolling with a donation of $25.00

Walking Together for Stronger, Heathier Babies

Comment by Ted Evers — April 5, 2011 @ 5:05 pm

I very rarely get actively involved in “causes” but donate to as many as possible, be even then there are so many needs especially in our economy today, but I have decided, very late, to walk in the “March for Babies” sponsored by the March of Dimes, a Banner Health supported charity.

My daughter had twins boys in February 2009 born prematurely and one was in the NICU for 9 weeks before he passed. The day of the March will be one month shy of the anniversary of his memorial and it seemed fitting and proper that I do something. I was going to donate, but I have his picture in my office and I looked up and saw him and just had to do more.

Your sponsorship gift will fund March of Dimes research and programs that help moms have full-term pregnancies allowing their babies begin healthy lives. Having spent the better part of nine weeks in the NICU, your sponsorhsip will also be used to bring comfort and information to families with a baby in newborn intensive care.

Thank you for helping me to help this organization give as many babies as possible a fighting chance and a healthy start!

Walking Together for Stronger, Heathier Babies

Comment by Patty Castillo — April 6, 2011 @ 9:22 pm

This is my first year joining the march of dimes. In 2009 I got pregnant and shortly after that we found out we were going to have twins. A month after finding that out, we found that one of the twins was not healthy and would not make it. I was supposed to have Identical twin girls. We had a surgey to seperate the twins connection so that the healthy twin would make it when the other one passed. I’m sad that I don’t have both my girls but very happy to have my Adelina. She was born at 28 weeks weighing 2 pounds and 13 1/2 inches long. Adelina was in the hopspital for two months and we did not get to hold her until she was 3 weeks old. Seeing her in the hospital everyday for two months(and not being able to hold her for 3 weeks) was the hardest time of my life. I just wanted to hold her and take her home with me everyday i seen her. This is why I want to walk and help the march of dimes. I want to help prevent future parents from going through the same thing. I am blessed that they could save my little 2 pound Adelina. And I am thankful for her everday!

Walking Together for Stronger, Heathier Babies

Comment by Patty Castillo — April 6, 2011 @ 9:31 pm

Adelina is now 20 months old and is very healthy!

Walking Together for Stronger, Heathier Babies

Comment by Rachel Hendricks — April 7, 2011 @ 2:24 pm

My family and friends will walk for the 1st time April 2011 because my daughter Samantha Mae was born at 26 weeks in September 2009. She was only 1 lb 9oz and 13 inches long!! She is truly a miracle! I found out I had lupus, fibromyalgia, and antiphospholipid syndrome which is a blood clotting disorder. All of these disorders combined made it very hard for our little girl to grow inside me and we had no idea I had anything until I was 25 weeks along. The only complication I seemed to have were blood clots in my hands called vasculitis. I had them from day 1 of conception but the doctors just dismissed the tiny painful red dots. If they hadn’t then they would have realized that I had the blood clotting disorder, the lupus and maybe even diagnosed the fibromyalgia. As a result they would have given me blood thinners which would have kept my baby in my belly until she could be fully developed. In late September I was admitted to the hospital with a blood pressure of 170/140 and was told I would be there for a while. A week later the doctors decided Sammy and I were healthy and stable enough to go home. They took the monitors off me and my belly and left the room. Thank God my mom was in the room because not 5 minutes later I had a seizure. They wouldn’t have known if no one was in the room with me and I had stopped breathing. An hour later on September 25th 2009 at 13:13pm Samantha Mae was born weighing only 1 lb 9 oz and measuring 13 inches long. I don’t remember a single thing except asking to be put out because of the pain. Days later when I was stable enough to see Sam it was in an isolette, with a bili light on for jaundice. The light would have hurt her eyes if she had opened them so they put the tiniest soft glasses on her face to protect her. She needed to be put on a respirator almost immediately so her little face was all taped up to hold the tube in place. I think it took days before I could see my babies face. She also had an umbilical catheter which is inserted into an artery in the umbilical cord, a vein in the umbilical cord, or both, to allow fluid and medication administration, blood pressure monitoring, painless blood sampling, and other procedures. Wrapped around her little foot was a pulse oximeter that had a red light. As the light traveled through the skin to the sensor, it measured the amount of hemoglobin that carried oxygen in the blood. She had several other wires leading from her body leading from her body including the cardiac and respiratory monitors which were stuck to her chest and side and led up to a machine that beeped constantly as her heart rate plummeted or as we called it “ a brady“ as in bradycardia. Her skin was so thin that you could see all her tiny veins. It was, as a new parent, the most horrifying site in the world to see your child suffering. For someone who has never been in this situation, I tried to paint a picture of exactly what she looked like because I think it is important for people to know how serious premature births are. Samantha had heart surgery to close a PDA, or patent ductus arterious, which in a lot of cases closes on its own. She has a scar that runs the length of her shoulder blade and a clip holding the PDA closed. Samantha struggled on the respirator for 3 months our of her 4 month hospital stay and then continued on a high flow cannula until she could tolerate regular oxygen. We eventually brought her home on O2 which she continued for 9 months. While in the NICU she also participated in a steroid study to help determine whether all preemies needed such a high dose of steroids to help their lungs continue to develop. She was on steroids a while and ended up weaning off the steroids at home. They served their purpose well, her lungs are in wonderful condition! We are so blessed that these are the only problems we have had to face. Samantha has no eye problems like many preemies. For a while they thought she might have retinopathy but that ended up going away. It doesn’t even look like she will need glasses any time soon like a lot of preemies. We just found out her language skills are above and beyond where she needs to be at 18 months and her fine and gross motor skills are right where they need to be! My husband and I are so proud of her, she is such a happy little girl and I cant wait to show her off at the walk. She can’t wait to March for Babies, especially since she just learned to walk and that’s all she does these days!! I just want everyone out there to know that if you are pregnant you are in control of that little babies life from the moment they are conceived. Learn from your doctors, teachers, family, any information that you can on how to help care for this new baby growing inside you. If you feel like something is wrong, fight the world to fix it even if everyone tells you everything is fine because you know your body. Trust me, you do not want to end up sitting in the NICU next to your newborn. We hope that our story can touch just one person’s life and help to educate people about just a tiny portion of preemie life.

Walking Together for Stronger, Heathier Babies

Comment by Erinn — April 13, 2011 @ 11:20 pm

My sister and I have been walking since 2006 to honor my son Moses and to celebrate the life of his twin brother, Abraham. My twin boys were born at 28 weeks – Abraham was 2lb 10 oz and Moses was 2 lbs 7 oz. Moses had Downs Syndrome and didn’t have a very strong heart. He had to have open heart surgery at 1 month old, at Johns Hopkins Childrens Center here in Baltimore, where I live. He was around 4 lbs at the time. Dr. Vricella was successful in the surgery but being so small, Moses couldn’t bounce back and went home to be with Jesus.
Abraham spent 51 days in the NICU before coming home 2 days before Christmas, 2005. He is now a happy and healthy 5 1/2 year old who loves life!
We then got pregnant in 2009 with my son Kennedy. He was born at 34 weeks. He spent only 17 days in the same NICU that Moses and Abraham were in. What a unique joy to see the doctors and nurses who were so instrumental in our sanity and peace of mind during the time my boys were in the NICU.
Kennedy will celebrate his 1st birthday only days after the March.

My family is eternally grateful for the research and education that the March of Dimes provides for families like us. I certainly would not wish premature birth on any family but the March of Dimes makes it more bearable.
Thank you for the work that you do to save babies!

Walking Together for Stronger, Heathier Babies

Comment by Michelle neidig — April 28, 2011 @ 2:53 pm

My baby has a rare chromosome disorder i am pnly 20 and i have a two year old im sceard of premature birth he has to have heart sergery and i dont know if it will be right at birth ??? so pray for baby mason brown to have strenghth and strong WILL!!!

Walking Together for Stronger, Heathier Babies

Comment by MoDLin — May 5, 2011 @ 11:31 am

Michelle, I’m sorry to hear that your baby has a rare chromosome disorder. If you know the name of it or which chromosome is involved, you can send a question in an email to Askus@marchofdimes.com and the health education specialists will try to find information about it for you. They may be able to find a good support group, too.
We’re thinking of you and wishing you the best.

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